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Parent Support Virtual Event: Advocating as a Family: Navigating Usher Syndrome & Empowering Self-Advocacy
(Zoom event – please register at the link below)
In honor of Usher Syndrome Awareness Day, we invite parents to an hour of education and support with Pamela Aasen, M.Ed., B.Ed. Join us to meet other parents of children with Usher Syndrome in a safe and welcoming space.
As the mother of two young adult sons with Usher syndrome, Pamela has firsthand experience navigating the challenges and triumphs of raising children with unique needs. She has spent over two decades navigating the complexities of early intervention, educational accommodations, and parent-professional partnerships. She works with local, national, and international organizations to support parents, youth, and young adults. Alongside her husband, Pam guided her family’s transition from early parent-led advocacy to empowering her sons to become independent self-advocates, disability community leaders and mentors to others.
A published author and active community leader, Pam serves on the Rochester Institute of Technology (RIT) National Technical Institute for the Deaf (NTID) Foundation Board, as well as national advisory committees for the Hands & Voices Family Leadership in Language & Learning (FL3) Center and the American Academy of Pediatrics EHDI Provider Education Center. She has written extensively for Exceptional Parent Magazine, sharing insights on building effective parent-professional partnerships, fostering self-advocacy in youth, and empowering families.
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